Ontario IMD
Association
A group of Ontario medical professionals and scientists improving the diagnosis and management of children and adults with inherited metabolic disease (IMD)
News and updates
Welcome to Ontario IMD! We created this group to improve communication, collaboration and advocacy surrounding the important issues that relate to Ontario IMD patients. Please join (see button at header) for updates on our efforts and future meetings.Danielle Bourque, CHEO
Hanna Faghfoury, UHN
3 Oct 22: Meeting with MOH
Drs. Bourque and Faghfoury had a preliminary discussion with several members of the MOH Lab and Diagnostics branch on September 29 to discuss areas of concern related to equitable access to IMD testing. The discussion was constructive. We will share further updates on this important initiative when we receive.
22 Jul 2022: UPDATED IMD COVERED FOOD AND DRUG LIST
Please find the IMD Food and Drug List; updated in June 2022
7 Jun 2022: MOH OPEN LETTER
Please read and sign our letter to the Ministry of Health regarding metabolic laboratory testing. There is an urgent need to resolve the inequity related to patients paying out of pocket for tests that are standard of care for management. Find the letter here.
4 Jun 2022: ABBOTT RESUMES PRODUCTION OF SPECIALIZED FORMULA
Great news for IMD patients and the dieticians who have been working tirelessly to troubleshoot and advocate around the formula shortage.
Ontario IMD Centers
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friends and partners
- The Garrod Association
- Newborn Screening Ontario (NSO)
- Canadian College of Medical Geneticists (CCMG)
- British Inherited Metabolic Disease Group (BIMDG)
- Society for Inherited Metabolic Disorders (SIMD)
- Society for the Study of Inborn Errors of Metabolism (SSIEM)
- Genetic Metabolic Dieticians International (GMDI)
useful resources
Are you involved in a clinical trial?
We are looking to create an Ontario IMD clinical trials database that be accessed by healthcare providers, patients, and families. Please send us trial details here.
